Today was the Day Alexandra's PHATE came to life!

Uh oh! Mommy and Daddy received a denial notice from Health Assurance today. The letter said the Cranial Remolding Orthosis are considered “cosmetic”, and therefore are not covered by the insurance. Mommy and Daddy will have to pay 50% of the cost when we go for my appointment on the 30th. Daddy made some calls today to organizations such as Easter Seals, March of Dimes and the United Way to try to get some assistance. They were stern in saying they do not offer assistance for “that type of thing.” They don’t even seem to know or care what Plagiocephaly is, let alone offer assistance for it. Also, daddy called Orthomerica today to see if they know of any places for assistance? Hmmm! The nice lady that answered the phone said (off the cuff) “I don’t know of anyone that offers assistance, but maybe you should start something like that!” What a simple, life changing statement for our whole family.