Happy New Year Everybody!!

Happy New Year everybody. I stayed awake until about 11:00 pm at my Gigi and Pappys house. It was lots of fun. Mommy and Daddy let me have my CRO off all day today and Christmas Day too. I liked that of course, but I really have taken to it. The CRO is really a part of me now. I almost get more upset when it is off than when it is on.

Its already been 8 weeks I've been wearing my STARband!

It’s been one and a half months since I’ve been wearing my CRO now. We had a follow up appointment with my orthotist today and he made some more adjustments to the CRO to make sure it is working. He took some more measurements today, but stressed to us that the measurements aren’t as important as the condition of my head. I never seem to sit still while he is trying to measure me, so that makes it tough. He did mention, however, that after less than two months, that my head is looking better already. Here are the measurements:

Circumference 17 5/8 inches

Width 4 5/8 inches

Length 6 ¼ inches

Right F to Left R 6 inches

Left F to Right R 5 7/8 inches

**my diagonal difference is only 1/8 of an inch now instead of ¼ of an inch.

Daddy finalized our Partnership with Orthomerica Today!!

Daddy finalized our partnership with Blake Norquist at Orthomerica today. With their help, we will be able to provide up to 12 CRO per year to families that cannot otherwise afford them. What a great day. Its hard to believe we have come so far in such a short time. Daddy has been working on the website and is looking forward to helping any way that we can.

Mommy and Daddy decided to start Alexandra's P.H.A.T.E.

Mommy and Daddy decided today to create a 501(c) 3 organization to assist families who are affected by Torticollis, Plagiocephaly and Cranial Remolding Orthoses (helmets). Daddy came up with a great name. It will be called Alexandra’s P.H.A.T.E. The PHATE part stands for Plagiocephaly, Helmets And Torticollis Education. He is so smart. He is even going to start a website and try to get Orthomerica to pitch in and donate CROs to families that cannot otherwise afford them. Here I am only 8 months old and I already have a foundation named after me. How amazing!

PT again today and helmet doesn't even phase me anymore!

I am still having physical therapy weekly and am making progress every time. I am able to sit much longer by myself now. My range of motion to the left has increased to about 75%, which is a far cry from where I started. I am beginning to get on my hands and knees and think about crawling, but I am not quite there yet. Life is tough for Mommy and Daddy right now. When we go out in public we get a lot of stares. Of course, I don’t notice because all I do is smile and have a good old time. However, they recognize that people stare a lot at us. People just don’t seem to understand that I am just a baby girl. Look past my helmet and see me for what I am. Please do not turn away or avoid me because of it. Mommy wonders if she did the right thing by choosing to make me wear my CRO. Hopefully this will all be worth it in the long run. It is much harder on her than it is on me.