May be closing in on the end of my CRO therapy.

I had a visit with my Orthotist again today. I am beginning to see more and more redness on my right forehead. There really isn’t much more foam to sand away. I think we are almost to the end of its run. Certainly, I am much closer to the end than the beginning. Even with it on for a short time now, My forehead is getting quite a bit irritated. Mommy and Daddy have been making me wear it less and less. OMG (sorry to drop that on you, but I couldn’t resist) what an improvement though. They can really tell when I’m in the bathtub and my hair is wet. Besides just a little shift forward of my right ear, the change is unbelievable. Thank goodness!

More PT, More PT. I think I can, I think I can!

PT again today and things are moving rapidly now. I have been standing up (leaning on something) for about a week now. It is not out of the ordinary for me to stand and shake my booty to Yo Gabba Gabba for ½ hour or so. Where have the days gone when Mommy and Daddy could just lay me down and know where I would be when they came back? Its very exciting. My head tilt is minimal now, and at times you cannot really tell that I ever had the Torticollis. Its difficult to imagine that I have been through all that I have. I am just thankful for all of the help that I have had from my PT, my Orthotist, my Orthomerica STARband and my Mommy and Daddy. What an amazing first year it has been.

Meeting with Dr. Greene our Neruosurgeon at Children's today!

Mommy and Daddy seemed very nervous on the ride to Children’s Hospital today. Outside of this past week being one of the snowiest in PA history, they weren’t sure what to expect from Dr. Green. Thankfully her feelings about my progress could not have been better. She said, and I quote (although I’m not sure where that came from) “The helmet has certainly done its job!” Those were her exact words. I really didn’t care, because I just wanted to waive and Daddy wanted me to keep giving the touchdown signal. (He taught me that when Mommy wasn’t around) However, Mommy and Daddy couldn’t have been happier. The news couldn’t have been better. As a matter of fact, she mentioned that we really could be close to the end of my time in the helmet. Wow, what great news! Wait, what am I saying? I don’t know any different! This CRO was a part of me for the past four months. Will life be the same without it?

More adjustments, more adjustments. Ughhh!

Back to Delatorre today to get some adjustments and drive the Orthotist crazy while he tries to measure my head. Mommy and Daddy have really noticed the improvement in my shape now. It really seems to be doing the trick. As best he could, the orthotist took some more measurements. They were:

Circumference 18 inches

Width 4 ¾ inches

Length 6 5/16 inches

Right F to Left R 6 ¼ inches

Left F to Right R 6 1/8 inches

**once again, the orthotist stressed that the measurements are far from perfect. He, as well as, Mommy and Daddy have really seen improvement. An appointment was set for 2/17/2010 for me to see my neurosurgeon, Dr. Green. Hopefully she will be pleased with my improvement as well.

I am a crawling machine now!! Look out.

I had physical therapy today and my PT was amazed. Since she saw me last on 1/12 I have started crawling like a freight train. I rarely stop now. Once she got a hold of me, I was able to turn my head to the left almost 80 degrees. Wow, that is almost as good as it gets. This stuff really is working. I must say, I don’t like it all that much, but it is working. I am down to just about a 3-5 degree tilt to left when I’m sitting now. Yippee!!