Meeting with Dr. Greene our Neruosurgeon at Children's today!

Mommy and Daddy seemed very nervous on the ride to Children’s Hospital today. Outside of this past week being one of the snowiest in PA history, they weren’t sure what to expect from Dr. Green. Thankfully her feelings about my progress could not have been better. She said, and I quote (although I’m not sure where that came from) “The helmet has certainly done its job!” Those were her exact words. I really didn’t care, because I just wanted to waive and Daddy wanted me to keep giving the touchdown signal. (He taught me that when Mommy wasn’t around) However, Mommy and Daddy couldn’t have been happier. The news couldn’t have been better. As a matter of fact, she mentioned that we really could be close to the end of my time in the helmet. Wow, what great news! Wait, what am I saying? I don’t know any different! This CRO was a part of me for the past four months. Will life be the same without it?

More adjustments, more adjustments. Ughhh!

Back to Delatorre today to get some adjustments and drive the Orthotist crazy while he tries to measure my head. Mommy and Daddy have really noticed the improvement in my shape now. It really seems to be doing the trick. As best he could, the orthotist took some more measurements. They were:

Circumference 18 inches

Width 4 ¾ inches

Length 6 5/16 inches

Right F to Left R 6 ¼ inches

Left F to Right R 6 1/8 inches

**once again, the orthotist stressed that the measurements are far from perfect. He, as well as, Mommy and Daddy have really seen improvement. An appointment was set for 2/17/2010 for me to see my neurosurgeon, Dr. Green. Hopefully she will be pleased with my improvement as well.

I am a crawling machine now!! Look out.

I had physical therapy today and my PT was amazed. Since she saw me last on 1/12 I have started crawling like a freight train. I rarely stop now. Once she got a hold of me, I was able to turn my head to the left almost 80 degrees. Wow, that is almost as good as it gets. This stuff really is working. I must say, I don’t like it all that much, but it is working. I am down to just about a 3-5 degree tilt to left when I’m sitting now. Yippee!!

Happy New Year Everybody!!

Happy New Year everybody. I stayed awake until about 11:00 pm at my Gigi and Pappys house. It was lots of fun. Mommy and Daddy let me have my CRO off all day today and Christmas Day too. I liked that of course, but I really have taken to it. The CRO is really a part of me now. I almost get more upset when it is off than when it is on.

Its already been 8 weeks I've been wearing my STARband!

It’s been one and a half months since I’ve been wearing my CRO now. We had a follow up appointment with my orthotist today and he made some more adjustments to the CRO to make sure it is working. He took some more measurements today, but stressed to us that the measurements aren’t as important as the condition of my head. I never seem to sit still while he is trying to measure me, so that makes it tough. He did mention, however, that after less than two months, that my head is looking better already. Here are the measurements:

Circumference 17 5/8 inches

Width 4 5/8 inches

Length 6 ¼ inches

Right F to Left R 6 inches

Left F to Right R 5 7/8 inches

**my diagonal difference is only 1/8 of an inch now instead of ¼ of an inch.